AROUND HERE: AUGUST 2017

Around here, we have been..

ENJOYING the last bits of summer vacation.  Our volunteer fire department has a unique benefit of providing each of the firefighters and their families a 2 week stay in one of four cabins privately owned by the fire department relief association.  It is a wonderful benefit that our family looks forward to each year as the final summer celebration. Camp fires and canoe rides are daily occurrences and our relaxed eating schedule means that there is plenty of yummy ice cream.

PREPARING for school to start.  The kids all helped pick out supplies and their new school tennis shoes.  {D} has already started football practice and was very excited to get all the cool gear necessary. {K} had an orientation with her kindergarten teacher and was happy to learn that she has black hair, just like her.  The boys aren’t quite as enthusiastic to be back hitting the books already, but are excited to see their friends and meet their teachers.  And {M}, who is starting preschool, has no idea what to think.  We feel blessed that all of the kids will be in the same school building and will be able to see each other throughout the day.  That connection is sure to be a comfort to the girls in particular, as they are learning what school is all about.

PRACTICING patience.  Craig’s knee surgery was just over a week ago and the healing process has been much slower than we had anticipated.  It is tough for him to lay around and rely on other people for help with basic tasks.  We are trying to remember that it was a major surgery.  For those of you who don’t know, the doctors removed a piece of his hamstring to recreate a new ACL, which Craig had completely torn.  They also repaired two meniscus tears.  Looking ahead, we realize that physical therapy, icing and leg elevation, plus the fancy new leg brace he was given, are now just part of our everyday lives for the next 6-8 weeks.

As always, our weekly review ‘mini vlogs’ are available on our family YouTube channel ARROW HILL FAMILY.  Lots of bonus photos and videos you may want to check out!

INTRODUCING THE ‘AROUND HERE’ BLOG FEATURE

As my last post eluded to, I am currently doing a lot of research and soul searching – trying to figure out what direction this blog & website is headed.  When I started out, the plan was to make it mostly about our house design. But every house has a family, and mine is with me every.single.day (at least in the summer), and so I was finding it easiest to do quick posts about US or posts about things that WE were doing.

But now, when I look back on my first 75 days of blogging, I’m seeing that there hasn’t been a lot of talk about Arrow Hill Cottage at all!  That fact makes me a bit sad, and has me longing to sharpen my focus.

We are keenly aware that quite a few/ probably most of our followers up to this point are friends and family who know us well, and love to see images and videos of the things we are up to.  And so although I will be trying to focus more on home design aspects, I am also planning to keep up some family blogging to a lesser extent.

Each Monday, you will still be able to log into YouTube and get a little recap of the previous week.  Such as this video compilation, which includes tons of rainy day fun!

 

If you don’t subscribe to our family YouTube channel yet, we recommend you do so – because I won’t be making posts about each video we upload!  We have all our videos organized into playlists for convenience of finding the content that you want to watch.  As of right now, we have playlists for Family Home Videos, Arthrogryposis/AMC related videos and of course, our Weekly Photo Vlog.

On the blog, I plan to do one big recap near the end of each month or beginning of the next.  This feature will be titled ‘AROUND HERE’ and will chronicle all that our family has been up to in that corresponding month (school starting, holidays, birthdays, eventually even house building!)  If you click on the ‘AROUND HERE’ tab on the top of the website, you can access FAMILY ONLY posts through the ‘our adventures‘ menu and learn more about our HOME DESIGN & BUILDING through the ‘our home‘ menu.

Again, thanks so much for taking this journey with us!

PS:  Planning on making the last post about our weekly meal rotation tomorrow, and after that the FOCUS will begin!

DOLCH SIGHT WORD FLASH CARDS – FUN READING ACTIVITY!

Summer is nearing it’s end *sigh* and around here I have been nudging the kids ever so slightly back into the academic direction. The girls, of course, have been busy getting the basics down before their school debut.  {M} will be in Preschool 2 mornings per week and {K} will start half day Kindergarten.  They have been easily persuaded and seem to enjoy the special learning time we have together.  The latest activity we have been working on is letter flash cards, and they almost have recognition of all the letters in the alphabet.  Yay!

The boys though?  Well, they would rather be outside riding their bikes through mud puddles than reading a book.  I get it, I really do.  Summer is a fleeting moment, and you need to squeeze out every second of enjoyment you can!

Regardless though, we definitely do not want them to lose all the skills their teachers worked so hard to give them during the past school year.  {L} especially is in that formative ‘learning to read’ phase, and had mastered a series of entry level reader type books at the end of Kindergarten.  We were given a sight word list at his last teacher’s conference – a list of all the words he should know/recognize.  And though a great resource for us, {L} has had no interest in sitting down with the list.  He actually doesn’t care to sit down with a BOOK either, unless someone else is reading it to him.  I think he gets overwhelmed by all the words he ‘might not’ know.

So, I went into mama research mode.  How could I help him fine tune his reading in a fun and engaging way?

I looked online and discovered the Dolch Word List – which essentially is a collection of the most frequently used words in children’s literature.  It consists of 220 (non-noun) words. There is a separate list of 95 popular nouns. The Dolch Word List was originally compiled in the 1930’s, but still remains relevant today.  How is that for stay power?

With this collection of words, I set to work.  I developed a series of flash cards – color coded by grade level.

Then I sat down with {L} and laid out a few words – ones I knew he was familiar with – to make a sentence.  He read the sentence, looked up at me, and smiled.  Success!  I realized that if I made {L} sentences out of the words he already KNEW he would be less intimidated by reading, and we could slowly add in words to make the sentences more challenging.

He calls this new activity his ‘Reading Game’ and asks for it at least once per day.  Sometimes he helps me make up silly sentences such as ‘Go jump in the little bed and eat a ball.’  Boys will be boys, even when they are reading!

Go ahead and print off these cards and give them a try!  They are divided by level, so you can print only the words you need.  As each level is mastered, print off the next set!  I recommend you print them on white card stock paper for durability.  If you have a big bunch of kiddos that might benefit, maybe even consider lamination.

The 95 noun flashcards can be accessed here

I also compiled a quick list/reference of all the words included on the cards.

It can be used to track progress of which words have been mastered.  I saw some cute tips on Pinterest regarding word flashcards, such as punching holes in one corner and using a binder ring to keep them organized into three categories – 1.) words I know, 2.) words I’m working on, 3.) words I will learn.  A fun way to keep them all organized and keep your child motivated!

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Happy Reading!

ARTHROGRYPOSIS ADAPTATIONS – PLAYGROUND PART 2

Last week we began a lifelong journey. Our girl, home three months, had her first evaluation in the United States to begin a specialized treatment plan for her arthrogryposis.  We visited the Shriner’s Hospital closest to our home, about 2 1/2 hours away.  Shriner’s is a leading expert on orthopedic conditions , and specifically treat children from birth to age 18.  We had heard great things about them preceding our visit, and all were justified.  This place is amazing!

It was wonderful to sit down and talk with doctors who are familiar with this condition.  Because it is fairly rare, many doctors have never treated someone who has arthrogryposis.  They knew just what questions to ask, what x-rays to take.  They taught us what to keep an eye out for, and what to stop worrying about.

Generally speaking, all of the experts were in agreement.  Our daughter is amazing.  Through her six years, she has developed many techniques that work best for her own body.  She has adapted beautifully.  Considering she had essentially NO treatment for the first 5 years of her life (typically babies born with AMC will begin casting and intervention just a few weeks after birth), and the fact that she has been walking for less than a year, they were quite pleased with her range of motion and muscle strength.

There were a few surprises too, however.  It appears {K} has a slight bit of curve in her upper spine, the start of scoliosis perhaps.  The pediatric orthopedist mentioned that nearly 25% of arthrogryposis patients will develop scoliosis over time, simply because of the way their bodies compensate for alignment differences.  It is possible that this curve developed for {K} before she had her hip surgeries, and perhaps now that her hips are in alignment her spine will remain stable.  We are following a wait and see approach.

She was able to pick a toy for being so patient during X-rays.  It was no surprise that she chose something Hello Kitty related – girl loves her some Hello Kitty!  The puzzle was a great distraction for her while waiting.  Win-win!

The specialists also noted that her left wrist may merit some intervention.  It is currently mostly locked in a downward position, but she has amazing grip with that hand.  They feel that by unlocking that wrist she would have an easier time with self care tasks, such as dressing and grooming.    They sent us home with a hand brace/splint that they recommended she wear at night and for short periods during the day, to help stretch the wrist ligaments.  On our next visit, six months from now, we will meet with a hand specialist who will talk us through some options for the future.

{K} was fitted for some new AFOs (ankle foot orthotics) since her feet are growing and her toes are creeping over the edge of her old set.  She was pumped that they let her pick out her own color and pattern for the new set, and chose a butterfly option.  We will go back in a few weeks, once they are made, to try them on and do a final fitting before bringing them home.

Most of all we are just so, so happy that {K} will be able to start school this Fall with no limitations and no surgeries on the horizon.  A chance to be just like all the other little kids in her kindergarten class. The ability to have fun and play at recess, just like everyone else.  She has already mastered the ladder/slide combo!

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Again with the amazing grip – am I right?!?  The hanging on the bar before going down the slide?  All her idea.  This girl will move mountains!

YOU SAY GOOD MORNING

Every night as I tuck {K} into bed, she says to me ‘You say good morning’- not so much a question as a statement. A fact. I am quick to answer ‘Yes.  I will say ‘good morning!’  It is a little way that she reminds herself that even though she is closing her eyes now, when she opens them her family will STILL be there.  Precious words from a child newly home and still learning what family is all about.

This past week found us in many waiting rooms.  Waiting to see specialists who would begin evaluations for what will be years of care.  She has already been through so much, and will continue to be faced with many challenges. More on that tomorrow.

After the appointments we were able to meet up with some very special people who knew our daughter long before we did.  The incredible family who fostered her while she was living in China (and coincidentally live only a couple hours away from us now!) and the sweet doctor from Shanghai who lobbied to get {K} the care she needed, the care she deserved. These people are so, so special to us and there will never be enough thank you’s to properly acknowledge how grateful we are that they stepped up for our girl, saw her worth, and were willing to fight for her. The fact that we were able to break bread together and see everything come full circle is nothing short of an orchestration by God Himself.  We are so blessed.

We were a bit worried though, that seeing these people from her past may set her back a bit – confuse her.  Worried that all of the doctor’s appointments might scare her and cause her to lose trust in us.  But God showed us, once again, that he is making beauty from ashes.  Through it all {K} held strong, she looked to us for reassurance, she leaned on us for comfort, and really seemed to understand that we were going through it all WITH her, FOR her. She understood that at the end of the day we were going to bring her home and back into that same bed in the evening, where we would tuck her in and she could once again say ‘You say good morning’. Our bond is getting stronger.

 

A reminder, if you ever want to catch up on what our family is up to – you can check out our family YouTube channel!

ARROW HILL STUDIO SNEAK PEEK

When I mentioned in THIS post that I was planning on starting an Etsy shop, I piqued some of your curiosities – and have been asked by a few of you WHEN this little branch project is going to be open for business, so I thought today I would give you a quick update on how things are going.

Initially I had thought that I would have everything ready by the end of July.  Then, I started tackling some other projects around the house – such as {D}’s tiny bedroom and our Family Command Center – and I’m not ashamed to admit that there are only so many hours in a day/week/month… not like you didn’t already know that!

We are rounding the corner on summer break.  The kids got their school supply shopping lists last week.  Eeek!  This both thrills me (routine, again!) and has me scratching my head.  Didn’t school JUST finish up for the summer?  At any rate, I am trying my best to soak up every last second of this fleeting season with my kiddos, and as such the Etsy shop project is moving slower than I had anticipated.

But, it IS moving forward.  I have been able to create and photograph a few of the products already and am totally loving the vibe that these items send out.  They make me happy.  It is always so much fun to see an idea that was once in my head come to life for others to see.

While creating more products I am also working through not so fun logistics regarding packaging, shipping labels, and shop policies.  All told, I am now shooting for a grand opening date of September 1st.  Stay tuned here or on one of our social media venues, such as Instagram, for the big announcement!

REMEMBERING THE EVERYDAY

I just finished uploading the 4th installment of our weekly photo vlog!  I have slowly been improving the quality and content of this series.  This week I made the text a bit larger (and more readable) and also added a new feature – small videos within the scrolling timeline video!  I’m happy with how it turned out!

An entire month of our family’s memories have now been preserved.  Sure, it took a little more effort than what I have previously put forth; But now all these precious photos and videos are presented in a FUN way, and easily accessible instead of being stored and hidden in a computer file.

These little weekly videos simply showcase our lives – no fancy vacations or spectacular adventures.  They may not get thousands (or even hundreds) of views on YouTube, and that’s okay.

It’s not about that.  It’s about us.

They are a reminder of how brave {K} was at her very first checkup in the United States, a glimpse of how the boys used their imaginations and worked together to create some awesome fidget spinners, and a memory of the giant smile I had on my face when Craig raced all the kids on his 37th birthday – just to prove to himself that he was still the fastest.  On those days when it feels like all I do is cook, and clean, and wipe dirty hands for the millionth time – when I feel like ‘just’ a stay at home mom – I can remember that I am also a curator of family memories.

We will hopefully watch these videos in the future and recognize that our lives are full.  Full of love.  Full of togetherness. Full of happiness. Full of the simple everyday.

 

To see all the videos in this series, click HERE.

ARTHROGRYPOSIS ADAPTATIONS – PLAYGROUND

Raising {K} these past 3 months has been a complete eye opener, a game changing experience.  Never before as parents have we been faced with as much emotion over a child.  The low lows and the high highs.  She is the first of our children that we have seen struggle physically.  If you have been reading this blog you know that {K} has arthrogryposis (AMC for short).  It affects her ability to bend many of the joints in her body.  Because it is fairly rare, (1 in every 3,000 births) most people have never heard of this condition and are taken aback the first time they see {K} moving around.  In photos it is easy to find the ‘right’ angle, position her body just so… make it look like nothing is different.  But things are different, and that’s OK. This is real life.

Each time that our family is out in public, I can see people watching her.  I don’t think she notices… yet, but sometimes it does bother me.  I always try to take a step back and remember what life was like before this diagnosis became part of our every day.  If I had seen someone moving the way she does, tackling things in their own special way, would I have been the one sneaking peeks?  Probably.  It’s not necessarily done in a mean or mocking way. People are curious.

When we first committed to adopting her, we scoured the internet – searching for videos of children and adults living with arthrogryposis.  We were curious.  Were they living full, happy lives?  Were they able to feed themselves?  Drive a car?  Go to school?  Did they marry?  Have children?  We found some videos, but not many. And so, knowing that there may be others out there who are either considering adopting a child with AMC or have just been given the diagnosis as a new parent and could use the encouragement, I am going to be starting a series of videos that showcase how adaptable people with this condition really are!  In fact, as I will write about at a later date, I really hesitate to call arthrogryposis a disability.  People living with it may do things a bit differently – but they are ABLE!  I also want {K} to look back when she is older and see how far she has come, how much strength she has gained.  She learned to walk at 6 years old (just a little over half a year ago) and there is no stopping her now!

Keep in mind that each person with AMC is affected differently.  Some may have very little function in their upper limbs, others may not have use of their legs.  Many, like {K}, are affected in most joints on a less severe degree. Probably {K}s biggest challenges are her knees and shoulders.  She can bend her knees about 15-20 degrees at this point (though she is gaining more flexibility the more she uses them!).  Her shoulders do move, but not in full rotation.  She can not lift her hands actively above her head.  They can be pulled into that position, but will not remain there when she isn’t grasping onto something.  Her biggest strengths are definitely her iron will/ determination and her super strong grip!  Mark my words, that girl will be swinging on the monkey bars before too long! She can hang on SO tight!

Here she is from yesterday’s trip to the playground.  This particular piece of equipment is a tower like structure that at the very top is over 6 feet above the ground.  We have worked on it for weeks and weeks to figure out the best way that she could approach it, and she has gained confidence enough to climb from bottom to top on her own (I started the video late, when she was already part way up).  While videotaping, I was standing close by – one hand ready to catch her if she fell. She didn’t.

I recently found this New Zealand documentary that shares the stories of people living with arthrogryposis.  It’s a great one to watch if you are curious about this condition and it does a wonderful job of explaining the thoughts and feelings of people living with it.

I look forward to adding more videos to our YouTube channel, to document every day life with arthrogryposis.

BIG BROTHERS

I just have to say that this past week I have been so proud of our boys and how they protect and encourage their little sisters. Most days we spend time at the parks and playgrounds, and because it is summer and our town sees a lot of tourists during this season, the playgrounds are typically filled to the brim with kids.

I have heard our boys proudly declaring that {M} and {K} are their sisters.  I have seen them lend a helping hand if one of them is struggling with a piece of equipment.  They have been thrown the curious questions from other kids – tough things like ‘What is wrong with her legs?’ and ‘They don’t look like you… how are they your sisters?’ ‘Can you even understand them?’ – and answered them with dignity and grace.  They jump to action if they see someone picking on or making fun of one of their sisters and are always including the girls in their conversations and games.

They are their sisters biggest fans, allies and protectors.  They are wonderful big brothers and we are so proud of the young men they are becoming!

Here is a glimpse into our past week.  It was a simple one spent at home.

 

SMALL BEDROOM MAKEOVER: AIRPLANE INSPIRED ROOM FOR A PRE-TEEN BOY

Alternately titled:  Why our oldest son sleeps in a closet.

By now most everyone has heard of ‘tiny houses’ – little living structures, usually on wheels, which make use of every square inch.  I’m totally a fan of the idea, but it just wouldn’t be a practical way of living for our family.  If a tiny house seems a bit drastic for your family as well, why not consider a tiny room instead?

Our situation sort of happened by accident….

The rental farmhouse we live in has it’s fair share of quirks and frustrating features, but it has at least one redeeming quality that not many old homes can boast – lots of closet space!  These aren’t your average size closets either.  We are talking the walk-in variety in almost every room.

To set the stage, let me first mention that we were moving into the farmhouse from a 1904 American Foursquare that had basically no closet space.  Though it was challenging at first, through our 10 years of living in that home we came to the realization that we didn’t really NEED much for storage behind doors.  That type of storage almost inevitably allows a person to collect tons of items that are un-necessary or rarely used.  Out of sight, out of mind.  We made due in the Foursquare with two very small closets in two of the upstairs rooms.  There was not a single closet on the main level.

As we prepared to move into the farmhouse we saw all this great space that we didn’t necessarily need for it’s intended purpose.  The boys immediately claimed one of the large hall closets as the ‘Lego Room.’  While deciding who should occupy each of the 3 upstairs bedrooms, we measured furniture and floor space and realized that there was no way that we could appropriately fit 3 beds (1 for each boy) in any of the rooms.  Even with two of the beds bunked, there wasn’t a layout I could imagine that would make sense.

Then one day while we were scratching our heads about where everyone would sleep, I noticed that the closet in one of the rooms seemed like it just might be large enough to fit a bed.  We measured and, sure enough, it fit with space to spare!  The ideas of a tiny bedroom for our oldest, {D}, began flooding my mind.  He was excited about the prospect of having a bit of privacy from his younger brothers, but wasn’t sure how it would all be pulled together. And the truth is, I wasn’t totally sure either.  Nevertheless, we moved forward with the plan- removing the closet door and placing a bed, small side table and a shelf in the tiny space.  It remained a hodgepodge of items for over 2 years, with no complaints from {D}.

Last week, while the boys were all staying with grandpa and grandma and I was in the full throws of ‘Summer Organization Blitz 2017’, I decided that this little room could use an update to reflect the pre-teen interests of our son.  At 10 years old, he is currently really into airplanes and all things flight.  Without further ado – I’m happy to reveal the new design of his 4 foot x 9 1/2 foot space.

View from his bed – looking into the room where his two brothers sleep.  Connected, yet separate.

His bed and nightstand are on one side of the room.  The bed has drawers which provide plenty of extra storage.  It’s where he keeps his collections and special gifts. The night stand is a piece from his great grandma.  It was once part of  a vanity that she used while applying her makeup.  The patina is magical.   A floating shelf filled with airplane books and vintage magazines hangs above – perfect for that late night read.

The other side of the room features a small desk and bookshelf, and is accented by an awesome airplane wing.  Of course, there is a story of how that came into our possession.  Basically we found it poking out of someone’s trash can a few years ago and hauled it home.  How could we not?  It isn’t every day you get access to an airplane wing!   It had been outside until this past week when I brought it in and cleaned it up.  It fits perfectly in the space! Meant to be!

There is a little bulletin board on the side wall that {D} can fill with inspiration and cool finds.  The ‘airplane alphabet’ is a favorite.

The desk has a couple of shallow drawers that are currently filled with Legos.  A typewriter sits on top of his desk – another vintage find which he picked up at grandpa and grandma’s estate sale.  A storage ottoman serves as a chair.

All of the little details really came together in a fun way.

{D} literally squealed with delight when he saw his refreshed room for the first time – and that is not a reaction that you get easily out of a pre-teen boy, let me tell you!

Our other boys are sort of jealous that they don’t have their own ‘tiny room’ – but their luck will change when we move into the cottage!  Using some of the ideas I have learned with this little space, I have been designing a shared bedroom for all three boys which will include a private sleeping nook for each of them.  There is just something so cozy about a tiny space.